Showing posts with label Myotonic Muscular Dystrophy. Show all posts
Showing posts with label Myotonic Muscular Dystrophy. Show all posts

Friday, April 19, 2013

Surprise!

As I was walking out my front door on my way to school this morning I had a little surprise....
Look what landed in my yard overnight!  We were flocked!  I loved the flamingo flocking fundraiser that Promise to Kate foundation has been doing but I had no idea I would have a flock land in MY yard!  LOL  My little brother and sister loved it.  They have named all the flamingos and want them to stay forever. 

We were flocked!

Wednesday, March 20, 2013

Brucci's Night for PTK

The Junior Board for Promise to Kate wants to do all they can to make money to give the hospital and scientists to find a cure for Myotonic Muscular Dystrophy.  The first official group fundraiser we planned was a dinner night at Brucci's Pizza.  Basically, the way it worked was the manager gives the wait staff the night off on Tuesdays and your fundraising group can serve, take orders, bus tables and clean up and you get all the tips for the night.   

The PTK Junior Board (and their family team of helpers) arrived for the dinner shift last night at 5 pm.  This picture shows the first shift, more helpers continued to arrive!
Promise to Kate Junior Board



We were so BUSY all night we barely had time for more photos but here are a few of the crew in action.

And one of the sweet little Kate we made a promise to...

The kids on the Junior Board ROCKED!  They were so sweet to all the customers asking to refill drinks, taking orders and cleaning up.  The owner of Brucci's said we did a FANTASTIC job!

And guess how much we raised?  $740.00!!!!!!

One especially special moment of the night for me was when my little brother, Chase (9 years old) told me he had written a speech to give at the restaurant.  I had to explain that it was probably going to be too loud for everyone to hear him but that I would post it on my blog.  Here it is:

In case it's too small for you to read, here's a translation (with his spelling):

Thank you for coming tonight but remember all the tips will go to the fodation Promise to Kate.  And the tips will go to Wolfsen Children hospital.  Now I will tell you a little bit about Kate she a little girl who has a very rare disease which is mitonic-musculers-destephey that disabels her body that is not as strong as us so please make a Promise to Kate and help this girl be like us.  thank you

This group of fabulous kids takes their Promise seriously.  Won't you join us?


Wednesday, March 13, 2013

Flamingo Flocking!

Promise to Kate recently kicked off a new fundraiser called Flamingo Flocking!  Basically, there are flocks of cute pink flamingos that can be "sent" to someone's yard if you pay to "flock" them.  And all the proceeds go to Promise to Kate foundation.  How fun is that? 


It costs $25 to flock a friend and the flamingos will migrate away after 48 hours.  They arrive with a sign stating that the owners of the house have been "flocked" by Promise to Kate.  Help us raise more money to find a cure for Myotonic Muscular Dystrophy and have a little fun.  Click HERE to go to the page to arrange your flock today!


THINK PINK!

Monday, February 25, 2013

Getting Geared Up for Picture a Cure!

Yesterday was a Promise to Kate - Junior Board work day to get ready for the big night - Picture a Cure!  We tied ribbons and cards on water bottles, counted out bunches of M & Ms in little baggies and stuffed gift bags.  But with all of us there working it was done in no time!


All of this will be seen at the big Picture a Cure fundraiser!  Last year was lots of fun for kids and adults as well as good food and many items up for bid on silent auction.  Check it out, I have my tickets, do you?



Saturday, February 9, 2013

Wolfson One to Grow On Birthday Celebration

I've written before about my commitment to do whatever I can to support Promise to Kate Foundation, and Wolfson Children's Hospital is one of the organizations we support with the money raised.  This is a busy fundraising time for Wolfson Children's Hospital.  During their One to Grow On celebration they are having a variety of fundraising activities but the telethon was a great way to get the fundraising started!

During our time manning the phones little Kate had fun helping answer the not ringing phones to practice.  She said, "Hi, I love you, goodbye." That girl has phone manners!  I enjoyed getting to meet the news anchors and families of other children who have been touched by the amazing doctors, nurses and support staff at Wolfson Children's Hospital.

This year as a part of the One To Grow On celebration, Kate Conte was chosen as one of Wolfson's 55 children to benefit from their care in the past year.  Kate and her family were honored at the annual birthday celebration that followed the Ultra Marathon and other runs raising money for the hospital.  I was honored to be there to meet other families with children honored as one of the "55" and to help hand out the medals in the recognition ceremony.  What a special day and a special group of people.  Special thank you to my sister queens for coming out to support!




Friday, December 21, 2012

Promise to Kate Junior Board

Every time Promise to Kate has an event a lot of kids are there because their parents are helping out. So I thought it would be great to start a Promise to Kate Junior board so that not only can they also feel a part of Promise to Kate but they can help fund raise and get more involved. This week I held the first Promise to Kate Junior Board meeting! It was so exciting to hear all of the other members good ideas for upcoming 2013. This will really help Promise to Kate get out there more, because the more people that are aware the better.  Look for great things to happen this year!
1st Meeting of the PTK Junior Board!

Wednesday, December 19, 2012

Big day!

I am so proud to be a part of working with Promise to Kate Foundation.  Mr. and Mrs. Conte have made a Promise to Kate that they will do everything they can to find a cure for Myotonic Muscular Dystrophy.  The money they raise goes to research and diagnosis of children with the disease. Watch the video below to see Kate's story. 





This afternoon I was proud to be a part of a visit to Wolfson Children's Hospital where Promise to Kate made a $10,000 donation to pay for the 3Tesla MRI machine that helps diagnose young patients quickly.  It is cutting-edge technology.  It cost much more than $10,000, but this donation will help pay some of what they still owe for the machine. Wow!  Thank you to everyone who participated in the fundraisers this year and I can't wait to help PTK do some amazing things in 2013!